Abandoned by his parents at birth, he struggled for years with emotional problems. Finally he spoke out, and inspired hundreds of people to action

Thirty-six hours after birth he was abandoned by his parents, because they could not bear the thought that they would have to raise a child with a serious genetic disease and struggle with that stigmatization.

Jono Lancaster, the name of the hero in this story, was born with a rare condition called Treacher Collins syndrome, which occurs in Europe once in every 50,000 births.

Abandoned by his parents at birth, he struggled for years with emotional problems. Finally he spoke out, and inspired hundreds of people to action 2


The symptoms of the disease are mainly a deformed face – disfigured eyes, distorted earlobes and a lowered jaw, which ultimately gives a person an unusual look. Individuals struggling with Treacher Collins syndrome often suffer from emotional problems, because they can not accept what they see every morning in the mirror. One of these people includes 20-year old Jono.

Abandoned by his parents at birth, he struggled for years with emotional problems. Finally he spoke out, and inspired hundreds of people to action 3


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